Our Story, Our Mission, Our People
We are a coalition of advocates, medical professionals, and community leaders dedicated to reshaping the narrative around sickle cell disorder in Nigeria. Through empathy and action, we build a future defined by hope.
Our Mission
To empower individuals and families affected by sickle cell disorder through comprehensive support, evidence-based education, and unwavering advocacy. We strive to dismantle stigma and ensure equitable access to quality healthcare across all communities.
Our Vision
A society where every person living with sickle cell disorder can thrive without limitations. We envision a healthcare ecosystem that is culturally sensitive, universally accessible, and driven by continuous innovation.
Our Values
The principles that guide our daily interactions, our strategic decisions, and our commitment to the community.
Compassion
Putting empathy at the core of every patient and family interaction.
Transparency
Maintaining open, honest communication with our donors and the public.
Community
Building strong, resilient networks of support across neighborhoods.
Evidence-Based
Grounding our programs and advocacy in the latest medical research and verifiable data to ensure maximum impact.
Cultural Sensitivity
Respecting and integrating local traditions and nuances into our outreach to build genuine, lasting trust.
Our Journey
Tracing our path of impact and growth.
Foundation Established
CKSI was founded and registered with the Corporate Affairs Commission to create awareness on sickle cell disorder and fill the gap in knowledge on treatment and care. Initial services included advocacy for better treatment, genotype testing in rural and urban areas, collaboration with other NGOs, and supporting hospitals with medications.
Community Advocacy Expansion
Intensified advocacy efforts in communities focusing on treatment and care for persons living with sickle cell disorder. Celebrated the first World Sickle Cell Day, raising awareness and educating communities about the condition.
Youth Counseling Initiative
Launched comprehensive information and counseling programs for youths on genotype compatibility to prevent sickle cell disorder. Expanded support for persons with sickle cell disorder in procuring medications and celebrated International Day of Sickle Cell.
Genetic Counseling Services
Introduced professional genetic counseling services for youths focusing on genotype compatibility education. Continued annual celebration of International Day of Sickle Cell to raise global awareness.
Program Consolidation
Consolidated and strengthened existing programs while expanding reach to more communities across Nigeria. Enhanced partnerships with healthcare facilities and other organizations working on sickle cell interventions.
Digital Innovation
Continued program expansion and improved service delivery methods. Prepared for digital transformation to reach wider populations across Nigeria with sickle cell education and support services.
Website Launch
Launched comprehensive website to reach more population on CKSI's work and interventions on sickle cell disorder. Enhanced digital presence to provide better access to resources, information, and support services for the sickle cell community.